Pathways from Waitlists to Person-Centered Supports for People with Intellectual and Developmental Disabilities (PATH-IDD)

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Many people with intellectual and developmental disabilities (I/DD) wait months or even years to receive the home and community based services (HCBS) they need to live healthy, independent lives. These long waitlists delay access to person-centered supports, creating significant barriers to good health, community living, and full participation.

The PATH-IDD project is working to change that. We are building evidence to identify effective and fair healthcare policies that strengthen Medicaid HCBS programs and improve outcomes for people with I/DD.
 

PATH-IDD Objectives

Working closely with our partners—including community members and state advisory boards—PATH-IDD is developing a sustainable, multi pronged approach to:

• Examine how Medicaid policies affect waitlists, services, health, and community life for people with I/DD;
   
• Develop and Test a person-centered tool that helps people with I/DD and their families share their needs and helps states better manage waitlists and improve services; and
   
• Create easy-to-use resources to help people with I/DD and their families understand and navigate HCBS.

Through this work, PATH-IDD will generate actionable insights and tools to improve Medicaid HCBS and promote person-centered planning, and community integration for people with I/DD.