Care Coordination Organization/Health Home (CCO/HH) Program Evaluation

Handicapped boy spending time with his father in a wheelchair

Individuals with intellectual and/or developmental disabilities (I/DD) are more likely than the general population to develop chronic health conditions at younger ages and/or experience co-occurring (i.e., accompanying) mental illness. The key challenges affecting this population include difficulties navigating the health care system, caregiver burnout, and difficulty finding employment and social support.

Since 2018, the New York State Department of Health and the New York State Office for People With Developmental Disabilities (OPWDD) have served individuals with I/DD through the Care Coordination Organization/Health Homes (CCO/HHs) program.

The program strives to provide person–centered, holistic service planning to ensure individuals with I/DD receive high quality and integrated care.

AIR's Program Evaluation

AIR is working with OPWDD to evaluate the CCO/HH program, using document reviews; a provider entity and care manager survey; in-depth interviews and focus groups with program stakeholders; and analyses of state-level datasets.

The aim of the evaluation is to understand if and to what extent the program is meeting its goals; whether it is successfully addressing the complex demands of individuals with special needs; and understanding what can be done from a care coordination perspective to improve care integration and delivery, as well as individuals’ quality-of-life experience and outcomes.

Tanvi Rao
Senior Economist
Rekha Varghese
Managing Researcher